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Family Village: Fanconi Anemia
Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
http://www.familyvillage.wisc.edu/lib_fanc...
Hope for Henry
This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
http://www.hsg.org/
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
http://www.mazornet.com/genetics/fanconi_a...
Fanconi Anemia Research Fund
To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
http://www.fanconi.org/
Fanconi Canada
Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
http://www.fanconicanada.org
Fanconi
Yahoo list group for sufferers of this condition.
http://health.groups.yahoo.com/group/fanco...
Fanconi Anemia Web
An informational site for this disorder.
http://members.tripod.com/fanconianemiaweb...
Kaps for Kendall
In memory of Kendall Atkinson who died of Fanconi Anemia. Make or sponsor a hat that will be donated to children and adults in cancer and hematology treatment centers.
http://www.kapsforkendall.com
Fanconi Anemia
Discusses the genetics of this condition and treatment options.
http://www.members.cox.net/amgough/Fanconi...
Fanconi Anaemia
A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
http://www.cancerindex.org/ccw/fanconi.htm
B Positive, Inc.
A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
http://www.bpositiveinc.com
Adam Day
Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund.
http://www.adam.interactiveinc.com/
Alex and Matt Pearl
Personal stories of two children fighting Fanconi Anemia.
http://www.alexandmatt.com
Blackfan
Yahoo list group for Diamond Black Fan Anemia sufferers.
http://health.groups.yahoo.com/group/black...
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2006