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Report of the Working Group on Long-Term Care
US Department of Labor, Advisory Council Report to recommend policy changes and education on broad scope of findings.
http://www.dol.gov/ebsa/publications/repor...
Ten Resolutions
A psychologist offers strategies for dealing with painful illnesses.
http://www.tenresolutions.org
Chronic Illness Tips
A personal account of strategies for daily living.
http://showcase.netins.net/web/fmd/chronic...
Coping with a Chronic Illness in your Family
Advice to family members, including communication, financial matters, independence and taking charge.
http://www.eldercareadvocates.com/pages/ar...
Improving Chronic Illness Care
Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.
http://www.improvingchroniccare.org/
Family Caregiver Alliance
National Center on Caregiving offers fact sheets, advice, research reports, public policy briefs, and newsletters.
http://www.caregiver.org
Chronic Disease Management
British Columbia resources for physicians, patients and researchers. Includes success stories, self-management program, reports, research and Chronic Care Model.
http://www.healthservices.gov.bc.ca/cdm/
Next steps after your diagnosis: finding information and support
Consumer health information for people with a disease or chronic condition on how to obtain reliable treatment information by the Agency for Healthcare Research and Quality (USA).
http://www.ahrq.gov/consumer/diaginfo.htm
Managing your Chronic Illness
British Columbia's patient information with links to programs.
http://www.healthservices.gov.bc.ca/cdm/pa...
Learning to Live with a Chronic Condition
Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series.
https://www.mylifepath.com/producer/docume...
Managing Long Term Conditions (Chronic Disease Management)
A National Primary and Care Trust Development Funds program aimed to produce personalized care plans involving all medical and associated disciplines. No longer updated, it still contains valuable information for health care professionals.
http://www.natpact.nhs.uk/cms/2.php
Chronic Disease Prevention
Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.
http://www.cdc.gov/nccdphp/overview.htm
Learning to Cope with Chronic Illness
Practical advice to patients and significant others.
http://seniors-site.com/coping/chronic.htm...
A Day in a Life with Chronic Illness
A personal account of daily events aims to promote better understanding.
http://members.shaw.ca/zonaszone/illness/l...
Yoga For Chronic Illness
Article explains how yoga helps to maintain and restore health by stretching and breathing.
http://www.cancerlinks.com/Yoga/illness.ht...
Coping with Chronic Illness
The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease.
http://www.fathersnetwork.org/647.html?pag...
Chronic Conditions
Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.
http://www.seniornet.org/php/default.php?C...
Living with Long Term Illness
Tips and ideas on dealing with a chronic condition in daily life. Personal site.
http://www.xs4all.nl/~nvwagen/english/
Chronic Illness Coping
Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
http://www.mindpub.com/topic16.htm
Dealing with Illness and Disability
The London Borough of Hackney offers support through council, community, and government agencies in the fields of jobs, leisure, transport and allowances.
http://www.hackney.gov.uk/index/life/yl-il...
Living with Long Term Illness
Explains how lifestyle changes can be effective in self-managing a condition.
http://www.dva.gov.au/health/health_promot...
Self Management of Long-Term Illness
Seminar from The Pituitary Foundation's Third National Conference.
http://www.pituitary.org.uk/conference/200...
Coping with Long-term Physical Illness and Pain
Short explanation to counselors on defense mechanisms and coping styles of patients.
http://www.brandeis.edu/pcc/coping.html
Preventing Disability in the Elderly With Chronic Disease
Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
http://www.ahcpr.gov/research/elderdis.htm
Chronic Ill Net
Patients, doctors and researchers discuss diseases: Gulf War Syndrome, Chronic Fatigue Syndrome, AIDS, biological and chemical weapons. Many articles.
http://www.chronicillnet.org/index.php3?re...
Chronic Disease Management
Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details.
http://www.calgaryhealthregion.ca/cdm/
Guidance for People Facing Serious Illness
Handbook gives short, practical advice how to handle serious illness and dying.
http://www.mywhatever.com/cifwriter/librar...
Center for Research on Chronic Illness
Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.
http://nursing.unc.edu/crci/
Ten Steps for Coping with a Chronic Condition
Harvard Health Publication Letter. Patient oriented advice.
http://www.health.harvard.edu/newsweek/10_...
Stanford Self-Management Programs
Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.
http://patienteducation.stanford.edu/progr...
Health Action Network
A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources.
http://www.procovery.com
Living with Chronic Illness
Personal advice on making adjustments and maintaining hope.
http://aces_autoimmune.tripod.com/copingb....
Living with Chronic Illness and Disease
Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.
http://www.chroniclife.com
Coping with Chronic Illness
Patient information publication of the Warren Grant Magnuson Clinical Center at the National Institutes of Health (USA).
http://www.nlm.nih.gov/cgi/medlineplus/lea...
Chronic Illness: Acceptance Is the First Step Toward Healing
Short description of the day to day acceptance process.
http://www.mult-sclerosis.org/news/Oct1999...
Palliative Care Council of South Australia
Resource and information service, representing services and hospices in South Australia. Contains consumer and professional information, including multicultural information.
http://www.pallcare.asn.au/
Chronic Health Conditions not a Barrier to Successful Aging
Advice on 'successful aging' with good management of several chronic conditions by HealthLink, the Medical College of Wisconsin.
http://healthlink.mcw.edu/article/10310024...
Poem, Pain Management, Chronic Illness
Poem about coping with pain using relaxation and imagery.
http://www.lehman.cuny.edu/faculty/jfleita...
Household Management Questions for Others with Chronic Illness
Practical advice on adjusting expectations, cleaning, time management and recommended books. Short thread in The New Homemaker.
http://www.thenewhomemaker.com/node/68558
Preventing Chronic Disease: Public Health Research, Practice and Policy
A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
http://www.cdc.gov/pcd/
Expert Patients Programme for Long-term Patients
Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
http://www.expertpatients.nhs.uk/
Coping with Chronic Illness
An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients.
http://www.alpineguild.com/COPING%20WITH%2...
Patient Self-Management - Chronic Disease Care
Overview of research and publications showing evidence patient self-management interventions lead to improved health status, increased patient satisfaction and reductions in hospital and emergency room costs, listed by the Californian Health Care Foundation.
http://www.chcf.org/topics/chronicdisease/...
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2006