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Fragile X Association of Southern California
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
http://www.fraxsocal.org
The National Fragile X Foundation
Features information about the disease, its treatment, and inheritance.
http://www.fragilex.org/
Fragile X Association of Australia
Information on this disease, medical aspects, education, references, contacts and what's new in Australia
http://www.fragilex.org.au/
FRAXA Research Foundation Home Page
Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
http://www.fraxa.org/
Living with Fragile X
One family's account of raising 3 children with Fragile X.
http://fragilex.ca
Carolina Fragile X Project
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
http://www.fpg.unc.edu/~fx/
Pediatric Oncal
Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
http://www.pediatriconcall.com/fordoctor/d...
Online Support Group
Support group for Family's who are dealing with Fragile X Syndrome.
http://groups.yahoo.com/group/fragilex/
Fragile X Research Foundation of Canada
Funds investigation of the most common inherited form of mental impairment and developmental disability, and provides newsletters and discussion groups, invites applications for research grants, and explains how to donate or join.
http://www.fragile-x.ca/
Conquer Fragile X, Inc.
Creating a virtual research center in Israel to find a cure.
http://www.conquerfragilex.org
Fragile X Syndrome
Single page on recognition of the condition in young children.
http://home.coqui.net/myrna/fragile.htm
Fragile X Syndrome - Diagnostic and Carrier Testing
A Policy Statement from the American College of Medical Genetics.
http://www.faseb.org/genetics/acmg/pol-16....
Maryland Fragile X Resource Group
A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
http://www.mdfragilex.org/
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2006