Lukol Directory: Health: Conditions and Diseases: Musculoskeletal Disorders: Congenital Anomalies: Craniosynostosis

Plagiocephaly Information Web Information on the diagnosis and correction of abnormal head shape. http://www.plagiocephaly.org/ Brynne and Craniosynostosis Personal experiences of a family and a child born with craniosynstosis. http://members.aol.com/cdbosworth/brynnesp... Devin's Craniosynostosis Devin was born with a condition called Craniosynostosis (Sagittal Synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada. http://www.geocities.com/mikayla_cutiepato... Craniosynostosis Information sheet compiled by National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medica... World Craniofacial Foundation Provides assistance for those in need of treatment. http://www.worldcf.org Cranio Online For parents of children born with cranial deformities. Includes support group and FAQ. [English and German] http://www.cranio-online.de/index_engl.htm... Tiffanni's Cranio Page About a baby with the condition including post-operative photos. http://www.geocities.com/grinch102/TIFFANN... Michal's Story English and Hebrew information on craniosynostosis based on the personal case of Michal Glanz from Israel. http://www.geocities.com/michalglanz/ Craniosynostosis Causes, pictures, and long term consequences. http://www.chw.org/display/PPF/DocID/22502... Craniosynostosis Article from eMedicine. http://www.emedicine.com/neuro/topic80.htm Craniosynostosis Article from the American Family Physician. http://www.aafp.org/afp/20040615/2863.html Craniosynostosis, Endoscopic Strip Craniectomy Information on surgical procedures. http://www.craniosynostosis.net/ Asher's Craniosynostosis Home Page Describes a family's experience with CS. Includes information and links about the condition and its treatment. http://www.geocities.com/HotSprings/Villa/... Craniosynostosis Definition, description, diagnosis, treatment and support. Includes photos of patients and illustrations of the cranial sutures involved in this condition. http://www.kidsplastsurg.com/craniosynosto... FACES: The National Craniofacial Association Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization. http://www.faces-cranio.org Sagittal Synostosis Homepage Information (including details of genetic research) and support for people affected by this condition. http://www.geocities.com/HotSprings/6751/ Sub Topics: Support Groups

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2006