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Guide to Marfans Syndrome
Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
http://www.marfanssyndrome.net
Marfans Research Foundation
Irish charity with information on fund raising activities and the condition.
http://www.marfansresearchfoundation.ie
The Mystery of Akhenaten: Genetics or Aesthetics?
A history of the pharoah along with theories applied to what he may have had, including Marfan's.
http://www.heptune.com/Marfans.html
A Diary about Marfan's
Marfan's patients diary of the diseases events in her life. Includes a list of links.
http://www.angelfire.com/ms2/CysticFibrosi...
Marfan Syndrome Forum
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
http://hometown.aol.com/bjthaler6/myhomepa...
Slovak Marfan Association
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
http://members.fortunecity.com/marfan
International Federation of Marfan Syndrome Organizations
A global information center providing links to Organizations around the world.
http://www.marfanworld.org/
National Marfan Foundation
Providing accurate and timely information about the disorder to patients, family members and physicians.
http://www.marfan.org/
MFS Type 1 Fibrillin Gene
A comprehensive site including major resources listed as well as genetic information.
http://www3.ncbi.nlm.nih.gov/entrez/dispom...
South African Marfan Syndrome Organisation
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
http://www.marfan.org.za
Marfan Syndrome
Comprehensive guide to this connective tissue disease.
http://www.ygyh.org/marfan/whatisit.htm
Swedish Marfan Association
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
http://user.tninet.se/~sda301a/
Marfan Syndrome
A Question-Answer format page of information.
http://www.medicinenet.com/Script/Main/Art...
Marfan Support and Information
Support group in New South Wales, Australia.
http://www.marfan.net.au
Univ. of Washington - Marfan Syndrome
What the disease is and includes the impacts on daily life.
http://www.orthop.washington.edu/arthritis...
Canadian Marfan Association
Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
http://www.marfan.ca/
Marfan Syndrome
Article from eMedicine.
http://www.emedicine.com/PED/topic1372.htm
Marfan Association UK
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
http://www.marfan.org.uk
American Heart Association - Marfan's Syndrome
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
http://www.americanheart.org/presenter.jht...
Marfan Syndrome
Online chapter from The Merck Manual of Medical Information.
http://www.merck.com/mrkshared/mmanual_hom...
Central Ohio Marfan Support Group
Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
http://www.homestead.com/marfansupport/
Yahoo! Support Group
Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.
http://health.groups.yahoo.com/group/Marfa...
Questions and Answers about Marfan Syndrome
From the National Institutes of Health.
http://www.niams.nih.gov/hi/topics/marfan/...
Living With Marfans
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
http://jrmarfan58.com
Marfan Syndrome: Does Diet Play a Role
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
http://www.ctds.info/marfan.html
Theresa E. Pageau - A Memorial Tribute
A tribute to a patient with this disease accompanied by information and links related to donating.
http://solo23.abac.com/billrobert/Theresa/...
Life and Issues of Marfan's Syndrome
Personal site by which describes the pathology and gives a bit of advice.
http://www.io.com/~cortese/marfan/
Stowarzyszenie Rodzin Chorych na Zespół Marfana
O stowarzyszeniu, informacje o zespole Marfana, rehabilitacji, adresy innych towarzystw.
http://www.marfan.sprint.pl/
Marfan-List
Information about an e-mail mailing list. Also includes links to other online support groups.
http://www.marfan-list.org
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2006