|
Joe Johnson and the Call Again Soon BBS
Directed at making life better for people affected by Leukodystrophy and those who know and love them.
http://www.joejohnson.net/
Alexander Disease
Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medica...
United Leukodystrophy Foundation
A non-profit, voluntary organization that provides assistance in identifying sources of medical care, social services, and genetic counseling for leukodystrophy patients and their families.
http://www.ulf.org/
MCW HealthLink - Alexander Disease
Information sheet from the Medical College of Wisconsin.
http://healthlink.mcw.edu/article/92138344...
Leukodystrophy
CHORUS document on the different types of Leukodystrophy. A little technical.
http://chorus.rad.mcw.edu/doc/00231.html
Leukodystrophy
A short information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/health_and_medica...
Family Village / Library / Leukodystrophy
Resources on Adrenoleukodystrophy, Alexander Disease, Canavan Disease, Krabbes Disease, Metachromatic Leukodystrophy, and Refsum's Disease.
http://www.familyvillage.wisc.edu/lib_leuk...
Brianna: Canavan Leukodystrophy
Personal page about how this neurological disorder affects children and their families. Provides links to resources and support.
http://hometown.aol.com/ydb739094/brianna....
Aicardi-Goutieres Syndrome
News, descriptions, contacts, and other information concerning this leukodystrophy.
http://www.aicardi-goutieres.com
Dylan Samuel Freeman
Dylan has a very rare neurological disorder, Alexanders disease (Leukodystrophy). His story, his progress, and photographs.
http://www.dylanfreeman.20m.com
Undiagnosed Leukodystrophy
Lauren's homepage, a six year old from Melbourne, Australia with an as yet undiagnosed neurological condition thought to be genetic.
http://members.tripod.com/phillipslauren/
|
2006